The North American Research Committee on Multiple Sclerosis (NARCOMS) is an active national Registry of over 34,000 individuals who have multiple sclerosis (MS). NARCOMS was initiated in 1993 by the Consortium of Multiple Sclerosis Centers (CMSC) and is led by Dr. Timothy Vollmer, M.D. to facilitate multi-center research that will lead to more effective treatments for MS.
The registry serves several purposes. It can expedite the recruitment of MS patients for clinical trials across the country and ultimately reduces the cost associated with that process. The data are also used to investigate important aspects of MS, such as the neutral course of the disease, patterns of care, long-term effects of treatment and factor affecting quality of life.
The project provides a unique opportunity for all MS patients over 18 years of age to facilitate MS research. All adults with MS are invited to join in this long-term research study by first enrolling in the registry by filling out a baseline survey and then completing an update questionnaire twice a year, either by mail or conveniently on line at www.narcoms.org.
If you have MS, and are interested in participating in NARCOMS, please contact Laura Hartman. hartman@mscenter.org.
She can mail you a hard copy or help you complete the registry.
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